Showing posts with label infertility. Show all posts
Showing posts with label infertility. Show all posts

Tuesday, January 21, 2014

Reflection

Millie
I sent a version of the following as an email to my family last night, explaining why I've been a bit out of touch. It's not the whole story, but it may shed some light on why I've been out of touch with you all as well. Please don't judge me too harshly.

Hello family, 

Dad called me after the holidays saying, "You're not answering your emails. What's wrong?" 

I was a bit defensive, admitting finally that I was maybe a little depressed, but it was true, I wasn't participating in the family chatter. It wasn't until after I got off the phone that I realized there was something behind that depression and that it hadn't occurred to me to tell any of you, or indeed, to admit to myself. 

And then it just seemed really sad to me that I went through the holidays burying this awareness. 

And then I realized I do this all the time, which seemed even sadder. 

So, in an attempt to break my habit and to have you all a bit closer, I want to tell you two things—first the thing that was bothering me then, and also the thing that is bothering me now.

Then: 

Because of Tamoxifen, the drug I take for breast cancer, I am at increased risk of endometrial cancer (cancer of the uterine lining). It's a numbers game and the odds are better that it will help me, so I'll likely be on this drug for ten years. In the two years I've been on it so far, my endometrial lining has gotten very thick, and I've had three endometrial cancer scares. They've done ultrasounds and sonohysterograms (a more invasive ultrasound) and finally, this time, most invasively of all, an endometrial biopsy. 

I wasn't as worried about the risk of cancer this time around, which everyone thought was small, as I was troubled by the biopsy itself. The procedure has similarities to an abortion, which is connected to traumatic memories for me, as well as the fact that I never got to have children. Over the holidays I was anticipating that experience but trying not to think about it either, and then waiting on biopsy results, which in spite of not worrying, got me worrying. Luckily the biopsy was negative. 

Tamoxifen is hard on me in other ways as well. After ten years, there'll be another drug and its side effects to contend with too. I won't get into details now, but suffice it to say, it can be depressing. Anyone you know who has breast cancer seemingly in their past - just know that it's never really over. I know I'm not the only "survivor" who feels like I shouldn't complain, like we're supposed to feel lucky because there are life-saving treatments available to us now that didn't exist before. I do have a lot of appreciation but that doesn't take away what's hard, or the worry about what will happen, in my uterus and otherwise, in the next eight years.

Now:

The new thing bothering me is very different, but I've been crying about it all week, ashamed, and embarrassed and, I don't know, just feeling heartbroken and terrible. Here's what happened: 

I was trimming the fur around my dog Millie's mouth. I have been grooming her every couple months for four years now without major mishap, but this time, I messed up. She tried to lick the scissors, which I had recently sharpened, and before I knew what was happening, I had sliced into her tongue. There was a lot of blood for about an hour but nothing the vet could do about it. 

She's doing fine, fully healed already, not in pain or having any trouble at all, and yet, writing this out, I'm crying all over again. The split in her tongue remains and will remain forever. Every time I see it, I feel rotten. 

When I called the vet I was in tears. The woman I spoke to told me she had a similar accident with a dog she had years ago and she, too, felt terrible. 

"Did you ever stop feeling terrible?" I asked. 

"No," she admitted. "I feel kind of terrible right now." For a moment, we laughed and I cried some more and we felt terrible together.

On the bright side, life goes on.

A belated thank you for all the holiday cheer and thoughtful gifts.

love

Amy

Sunday, August 11, 2013

Spoiler Alert

(From this spring. Uploaded the sequel to this one today. More of my videos here.)

I'm closing in on page three hundred of the first draft of what I hope one day will be the Babies or Not book. Once I'm finished—I figure I've got fifty or so more pages to write—I'll print the whole thing out and sit with it some place comfortable. In the warm sun I hope, maybe in a meadow or perhaps on a beach if I can finagle that, or else on the couch or sitting up in bed. In any case, I'll have a good red pen and some snacks and a notepad at my side.

I imagine I'll have some new writing to incorporate into the second draft, and a lot of older writing to strip away or wrangle into something more tightly honed. Eventually, I'll have a completed manuscript, the story of my journey through the reproductive years, which turned out very differently than I ever expected it would.

Early on in writing this, I began to imagine pitching the book to an agent or an editor, saying, "It's the story of an infertile abortion counselor's urgent but ambivalent desire to have children."

This imaginary conversation spawned a worry. What would I say if the editor or agent asks, "How does it end?" At first I drew a blank. So I asked myself, How does it end?

The answer came without a moment's hesitation. It's not exactly a fairy tale, but it's close enough for me:

"She gets cancer and lives happily ever after."

I hope the world wants this book, but if not, I'll be okay. I'll live my way into the next story.

Wednesday, June 12, 2013

Full Disclosure

I'm in the process of loading my latest video to YouTube, number #150!
But I haven't yet shared with you #149!
So here it is!
More of my videos here.

I haven't spoken up about this yet, here or otherwise. I wanted you to be the first to know: I'm finally writing the book, the Babies or Not memoir which this blog was originally intended to foster, all about working as an abortion counselor while struggling with infertility and the story that brought me to that place in my life and then beyond that place. It's about how "Babies or not?" the question became "Babies or not..." the resolution to live a full, brave, brazen life, regardless of cancer and marital upheaval and how parenting fits (or doesn't fit) into the picture.

I write every day, have been for a month or two now. I'm about seventy pages in and going strong. (I'm aiming for around 250 pages for the finished manuscript), and it feels like the most important, right work I've done. I look forward to sharing more with you about this - but for now - back to work!

Tuesday, April 30, 2013

The Inner Doubt Machine

After two years of procrastination, I finally get fitted for a prosthetic breast. More of my videos here.
I started this blog in hopes that someday I'd wrangle a book out of all my experiences around the question of pregnancy (at the time I was working as an abortion counselor, facing my own infertility.) 

Since before I could properly hold a pencil, I knew I wanted to grow up to become a writer and an an artist, that I wanted to make books. I've made swipes at it for years. I have several more-finished-than-not manuscripts and book proposals tucked away. And the few times I've put myself out there, I have had some encouraging small successes. 

This is not the first time I've bent myself to the task of being a writer, but this time, I can tell, it's different. I'm not sure I can put my finger on what has shifted. Maybe it's because of the cancer, which doesn't let me forget that life is a precious and fleeting thing. Maybe it's because I have reached critical mass to counteract the inner doubt machine - finally enough people in my life who consistently express interest in what I have to say. (How do you work through the hard parts of expressing yourself when you don't believe anyone will ever be interested in your vision?)

So if I'm not writing on the blog so much as I once did, and not making so many videos either, I hope you'll understand. I'm busy taking it to the next level.

And I plan to take you with me. Stay tuned.

Sunday, February 27, 2011

Get Me Bodied

Yesterday's vlog. More of my videos here.
In "normal" life, too much time on the couch and too much junky starchy fatty foods is a straight-line prescription for the blues. Though chemo has everything to do with my dietary choices and my couch-potato nature of late, the result is the same. I've been feeling low today.

But then I came across the video April Capil posted on the day of and in celebration of her last chemotherapy treatment. In it, she dances sassy and silly to Beyonce's "Get Me Bodied." I was so touched by her exuberance, her shamelessness, and her implied messages, both that this too shall pass, and that life is to be lived.

So that's it! I'm putting on music now, right now and loud, and dancing around the living room. The teenager and husband in the house can scoff or join in, whatever they please. I will not be daunted. Life is now.

April's video.

Tuesday, September 14, 2010

There Are Reasons


I have been silent for a month. Why?

The most recent reason is the lump, but I'll get to that.

At first it was because I was giving myself a vacation from the computer, spending more time outdoors, enjoying the waning days of summer, my favorite time of the year.

Then it was because the fertility specialist had recommended I retest that one clotting factor in order to get a better sense of whether blood clotting might be an issue in my next pregnancy. But for some reason, I kept putting off that blood test, and I didn't know what to say about that.

Then, on the heels of a heart-to-heart with J~ about why it didn't seem to bother him that I wasn't following through, it became clear to me that I was in it, on a certain level, alone. While another child was a dream for him, it wasn't a high priority. I came to understand yet again (but perhaps a bit more deeply) that a baby would basically be my project, my all-consuming chore for years to come, and though he would help in every way he could, and though he would be a dedicated and loving father, and though I would take immense pleasure in raising my own child... I could not bring myself to finish this sentence.

I finally told J~ that I did not want this badly enough to want it badly alone. J~ had to admit, he was not in that place. "Maybe twenty years ago..." he began, and suddenly I was thinking back over my own past, landing on myself at 25. I worked part-time as a nanny for four children, ages 5, 5, 3 and 1 1/2, and I was good at it, I enjoyed it. One afternoon I drew a picture of the baby, asleep in her stroller, all her pudgy folds, and as I did this, on some level I knew. I was ready. But I wasn't financially stable and my boyfriend would have been terrified. I expect if I had told him then that I wanted to have a baby, he would have disappeared in a cloud of dust a la Road Runner and Wile E. Coyote. (Which is what he did ten years later, but that's another story.)

And then I wasn't writing because I didn't know how to tell you I'd pulled the plug. Though I still don't see myself actively preventing pregnancy, I am done trying, more done than any of the other times I've professed that I was done. I fear, dear readers, you will be disappointed and you will go away.

It's a funny thing, blogging. When I started this, I was throwing my words into the ether, thrilled and surprised to find anyone out there was actually taking the time to read them. I'm not a secretive person by nature. Over time, many of my friends and family members came to know that I do this. My mother reads regularly, my father checks in. It doesn't escape my consciousness that there's a good chance my ex-husband stops by on occasion, satisfying his curiosity while sidestepping the pesky chore of actually communicating with me. I never thought I'd come to depend on the support I receive from or feel a responsibility to the large community of strangers who make up most of my readers. But sometimes I wish I'd never told anyone I know.

Because then, when I find a lump in my breast, I wouldn't feel reluctant to write about it. I wouldn't worry about pushy questions and panicky judgments about my choices in health care. I don't want to be grilled about what I'm doing and not doing and how fast I'm doing and not doing it. I don't want to hear horror stories. I don't want everyone's fear flying at me. Trust me, I'm scared enough.

On the bright side, my lump is less than half the size it was when we first found it 10 days ago. The radiologist I spoke to said that while "anything can happen" she'd never heard of a cancerous lump shrinking, that it's very common in women my age that benign lumps grow and shrink along with the ebb and flow of the menstrual cycle, and she confirmed what I've read all over the internet – that 80% of all breast lumps turn out to be benign. And that when there are more than one lump next to each other (it turns out there are two of them) it's actually a good sign.

Thursday, July 08, 2010

Moving Forward

I've been a negligent blogger. Ever since I put the last miscarriage behind me, I've been moving – biking, running, swimming. J~ is training for the Hartford Marathon in October, his first ever, and his excitement is contagious. I've never run more than six miles in a row myself, but now I'm considering it. I'm maybe just maybe going to do the half marathon. That's enough for me, I think. Thirteen miles? We'll see how it goes.

I've been reading three books on miscarriage, and I want to recommend all three, particularly the idea of reading all o them at the same time. They cover some of the same scientific bases but from different points of view, which makes it possible to get a nuanced understanding of the state of this mysterious medical field. I recommend these books especially if you, like me, have had multiple miscarriages and don't have a lock on why. So without further ado, here are the books. Click on them for more info:

          

Since I last wrote. J~ and I visited a new fertility clinic. This was not an easy thing for me to do. In fact, I told J~ I wanted to cancel because I hadn't secured all my medical records in time. He asked for the real reason, and I had to admit my fear of being judged, my discouragement, my desire not to give over any more of my life to what seems to be a losing battle. All of this made me cry to admit, and the tears cleared the air. I didn't cancel the appointment.

The doctor was friendly, respectful, and patient as I recounted my history and ran him through the gauntlet of my ten million questions (I came with a list). He recommended a battery of blood tests (for hormone levels, clotting and immunology issues, thyroid function, insulin, and of course genetics testing for both of us.) He also recommended a Sonohystogram (SHG), a procedure in which saline solution is injected through the cervix in order to better view the uterus via ultrasound.

I've said many times that I'm not up for anything invasive. Loyal readers, you've heard me say it. My rule of thumb: Nothing ever again goes in through my cervix except sperm. The doctor did not pressure me, or at least it didn't seem like he was pressuring. But many of my questions led back to this test. For instance, though I know it's a long shot, I've always been haunted by the question, What if I have scarring from the abortion? Could that cause an early miscarriage? The doctor said, "The SHG would show if there is scarring."

I reconsidered. Could J~ be there with me? I asked. "Of course!" boomed the doc. And suddenly I was in tears. I had not been even close to crying recounting my history, or hearing that even if they find a problem and fix it, at my age, I may very well miscarry again. None of this was new information. The new thing was the realization, on some deep primal level, that the abortion is over. That I am not a frightened teenager all alone. That no one is judging me for what I'm going through, there is no shame in it. There will be no gruff, anonymous doctor treating me like just another vagina on a gruesome assembly line. I won't have to pretend, later in the day, that nothing happened.

(For the record, by the way, while working in an abortion clinic, I have seen with my own eyes that not all abortion docs are like that. I wouldn't go so far as to say they are usually personable and compassionate, but once in a while they are very much so.)

As things stand today, the blood tests are behind me. (I've never seen so many little glass vials lined up for my blood!)

As instructed, I will call to schedule my SHG when my next period arrives. (That is, if it arrives. J~ and I have been supremely uncareful this month. Then again, I'd be shocked if I'm pregnant again already. It's the first cycle after a miscarriage. I'm forty years old. And if you don't count #6, which, let's face it, maybe never really happened, this last pregnancy took almost two and a half years to achieve.)

I'm not optimistic that I'll ever get pregnant again, less optimistic that I'll find any answers. But right now, I feel good about going forward with these tests. Even if I never have a child to show for it, at least I'll eliminate some of the unknowns.

Wednesday, June 16, 2010

Ten Weeks Not

First off, I want to thank everyone who has taken the time and showed so much heart in sharing their stories and opinions. I take it all to heart. J~ and I read and discuss your comments together. It helps. It really does.

The other day I ran into a woman I know, an acquaintance who also happens to be a doctor. I took a deep breath and stopped her to ask if she knew an RE she could recommend who specializes in miscarriage. She didn't even know what an RE was, but of course asked many questions, and before I knew it I'd stumbled into that conversational cul-de-sac I have come to truly hate.  

Have you considered adoption?

Why must everyone ask this? It's part of why I find it so difficult to seek answers and support. Do people honestly think I haven't thought of that? Don't they realize that what they're saying, on some level, is, Have you considered giving up? 

You wouldn't ask an overweight neighbor, Why don't you just go on a diet? If someone stopped you on the street to ask for directions to Joe's Restaurant, you wouldn't say, Have you considered going to John's Restaurant instead? even thoughthe food at Joe's is greasy and over-priced. Wouldn't that be considered rude? Why is this different?

Okay, okay, I'm venting. I know people care and are just trying to understand. My anger isn't with this individual, or with anyone else who broaches the subject. It's just way too flip of a question about way too tricky a subject, and I hate how little sensitivity is built into our societal consciousness. It hits a very raw nerve. Perhaps it would be better if I just got angry in the moment, but instead I take on the role of educator, ambassador for all of us in this hidden realm of pregnancy loss. I make the mistake of answering with depth and feeling. I bare my soul. I told this woman, If my husband and I were ten years younger, if he didn't already have a child, I bet would be looking into adoption. If someone left a baby at our doorstep, or if J~ was saying he wanted to adopt, I'd probably be thrilled. I'd be nervous and I'd have to think about it, but I'd be thrilled. But this is not where we're at.

She was still looking at me with puzzlement and concern, so I went on to talk about the teenage abortion I never wanted to have, my fear ever since that I'd never get to have children. And just when I was about to admit that, at this point, after this many failures, I feel like I want the experience of a healthy pregnancy more than I want the child, I deflected her questioning expression by bringing the subject back around to my quest for help, to my fear of asking. To how much courage it took for me to stop her in passing and ask these revealing questions in the first place, let alone call up strangers on the phone. Because, let's face it, I've been wanting good medical support for a long time and have felt completely overwhelmed and discouraged about seeking it out.

And then she gave me some really good, simple advice. She suggested I let myself have my emotions but keep that separate from the work at hand. Make a list of tasks and do what you need to do

So I did. I sat down with J~ and went over his work schedule. I made some calls. And I made two appointments at times when he is free to come along, one with each of the major fertility clinics in the state. (I can't go out of state without paying out of pocket, so this is where I'll start.) Of course neither clinic wants to see me until I'm no longer pregnant, so both appointments are in July. Hopefully by then I'll be a clean slate, so to speak. Hopefully I won't be writing again next week at "Eleven Weeks Not."

At least for the time being, I'd like my body back.

Tuesday, June 08, 2010

Nine Weeks Not

Still waiting. Feeling less and less pregnant, though there are moments when I feel nauseous and tender. Strange how these little surges tease up hope, even when I know there isn't a chance.

On the other hand, the very fact that I got pregnant again raises my hopes.

Supposedly I was done trying, but very soon after I found out I was pregnant, I found myself thinking, if this one doesn't work, I might want to give it one more go. I told J~ my thoughts, and he agreed, he didn't feel quite done either. Another year, we agreed. We'll give it one more year.

I'm not sure yet when the clock starts on this One More Year, but certainly we're in the grace period now, while I'm waiting to miscarry, and probably for a cycle or two after that.

In the meantime, I am collecting inspirational stories - there are a nice bouquet of them in the comments of the previous post - thank you all so much!

Anybody else? I'm particularly interested in women who miscarried repeatedly in their thirties and then had a successful pregnancy after forty. I am learning that it happens much more frequently than I previously imagined. Details are welcome and encouraged!

I'm also on the lookout for good medical support. Long time readers might recall that I went to an RE two or three years ago, the only one I could find in my state (Connecticut) who focused on miscarriage. This doc had an air of defeat around him which I found troubling, though I couldn't quite put my finger on it until I got his form letter several weeks later announcing his retirement.

I'm also going to start charting again - I'm suspecting a luteal phase deficit and I want to gather evidence. I'd love to hear about any natural approaches to remedying this, if any exist. I have Clomid-phobia, though progesterone is looking less scary these days...

As for my age-old ambivalence about having children, it isn't exactly gone. I am clear in my desire to succeed at pregnancy, but the next part, where I give myself over physically, mentally, and financially to raising a child, that's harder to wrap my mind around. I really want to cross that bridge. I can imagine the triumph and joy I would feel to have done so. But the landscape on the other side? It still looks pretty darn challenging.

Friday, January 29, 2010

Now


Millie among the tracks (dog, human, wild turkey).

Daily romps with the dog.

Ideas for new art.

Occasional tears - making room for new dreams.

Professional development.

Community development.

Family development (the challenges of step-parenting, dog-parenting, spousing, life in a small house).

Random kindness and senseless acts of beauty.

Moving on.

Wednesday, October 14, 2009

Inventory



In honor of our anniversary, J~ and I spent a long weekend on Cape Cod, biking, window shopping, hiking the sand dunes, eating big decadent meals, and reminiscing about our early days as a couple. What a strange time that was for us, both reeling from our suddenly broken marriages, thrilled and nervous about the bond quickly forming between us.

The three years since we married are marked with so many milestones, not the least of which was made plain to me this weekend: somewhere along the line, this crazy new romance became a solid partnership. There have been down times of course, our failed pregnancies not the least of them. But the hardships we've faced together are framed by a shared tenderness, which turns them, to a certain degree, into treasured memories.

As I settle into the likelihood that I will not have children of my own, I accept that there will always be a certain amount of sadness in the picture for me. But I also see how that sadness has mellowed over the years. Until menopause – as long as there's hope – there will be vulnerability, but perhaps one day I'll carry only tiny scars where once there was an open wound.

Scanning my inner horizons, I see another emotional trauma yet unhealed, that of my first marriage's end. Time has helped, but I have not managed to close that wound. Perhaps this also has to do with hope, though I'm not sure what I'm hoping for. I certainly wouldn't trade what I have now for a return to that relationship, though it was not without its own beauty, and I appreciate the role it played in my life.

One thing is becoming more and more certain to me with every passing year: Life is short. Too short. It's a tragedy for all of us. The more I accept this, the more apparent it becomes that I can only do my best, assume everyone else is doing their best, grieve the disappointments as they arise but get back to appreciation of the fleeting present moment as quickly as possible. Because life is also pretty darn great.

Thursday, August 06, 2009

Midlife Crisis, chapter 2


The long view.

"It doesn't get any easier," said T~, the tall man swimming, and smiling in the lane next to me. We were at the gym, and I'd just come up for air after a challenging drill. I hadn't met him yet, but it turns out my sage of the swimming pool is a national top-ten champion in his age bracket. But not just any age bracket. T~ is eighty-seven years old. He might just know what he's talking about.

"Oh, why do I bother?" I replied, thinking of so much more than swimming laps.

T~ chuckled gently. "Sometimes I ask myself the same thing."

There's the operative word, folks: Sometimes.

Because sometimes it - life, laps, infertility - feels every inch as hard as it is. Sometimes it feels like mild drudgery, surmountable, but dull. Yet other times, it's really okay. And sometimes, some times, every once in a rare while, everything feels easy and great. You never know quite which you're going to get, but you have to show up to find out. And that is the answer in a nutshell. That is why I bother.

The other day I braved the heat and went for a run, my usual 6-mile loop from my house through my rural neighborhood, thinking all the way: look how lucky I am. I get to live in this beautiful place. I have a loving husband. I have a solid, cozy home, challenging, fulfilling work, health insurance, and not a penny of debt. I have a 39-year-old body that can run six miles with relative ease!

After my run, sweat-drenched, I peeled off my shoes and dove directly into my neighbor's pool. (I have a lovely neighbor who practically begs me to use her pool whenever I like.)

A week later I retraced my steps with a camera, counting my blessings, and documenting them too. A few of those pictures are included here.

Maybe I'm emerging from my midlife crisis. Or maybe this is a temporary reprieve. Whatever it is, I didn't want to let it slip by.

J~ took the week off last week. Perfect timing for ovulation - let's just say we put in our best effort yet.

I'll keep you posted.


Runner's heaven - a long dirt road through the woods.


Great Blue Heron on a beaver's dam - what a lucky day to be carrying a camera!


Joe pye weed in full bloom.


The pool next door - all of the cool, none of the work.


Warmth for the coming winter, one more cord on the way.

Wednesday, July 08, 2009

Midlife Crisis

When people ask me lately how I'm doing, I tell them, in a light and joking tone – but in all seriousness – that I'm having a midlife crisis.

I'm told a midlife crisis should entail flashy distraction: an extramarital affair, a shiny new sports car. In my case, there are long bicycle rides, the most recent of which was undertaken alone on the Fourth of July, 100+ miles of winding Connecticut roads from my home to my mother's where I met up with family and friends and celebrated the holiday, old school. (Literally - we went to see fireworks at my old high school.) The whole day was a pleasure.

That's the thing about midlife crises, they aren't straight-out despair and depression. There is something vigorous in them, a reclaiming of life's joy, a new-found intolerance of years-long low-level misery.

As long as I'm exercising, or with loved ones, I'm fine.

The down part comes only after several hours alone, during my solitary work days. That's when I start to sink. For the past two months, I've felt downright miserable a good deal of the time.

On the bright side (I know this will sound strange) I'm doing a lot of crying.

What's bright about this? The stuff I'm crying about is stuff I have needed to cry about for years: childhood loneliness and disappointments, dashed hopes, all the miscarriages, the divorce, the fact that I felt so poorly about myself that a marriage to someone who I knew wasn't deep-down sure he wanted to be with me felt like the best I could expect out of life, that such a thing, not so long ago, actually felt like good luck.

It's hard work, all this crying. I often feel feverish beforehand, heachachy, and afraid. The tears come in heavy, sweaty, snotty, guttural sobs.

I'm not doing this alone. I have counseling partners (we trade time in counselor and client roles, sometimes on the phone, sometimes in-person, taking turns caring and listening and handing each other tissues, trusting that this emotional expression is the path to healing). Sometimes I cry with J~. After each round, I feel lighter, better.

I love this midlife crisis, actually. I love that I can no longer tolerate a dull, low-level misery, that I can no longer mask it with a trumped up enthusiasm for a long list of chores. I love the sense that old limitations are lifting away, that slowly, subtly, I'm moving my life to higher ground. I feel brave.

I also have new thoughts about pregnancy, and the not-yet resolved Babies or Not question. More on that soon...

Wednesday, June 03, 2009

Letting Go. Or Not.



I've been ruminating on questions raised by my last post, namely, have I truly given up on pregnancy, and if not, why not continue to pursue answers? Why risk another miscarriage?

Such good questions, such simple questions. I've been soul-searching for weeks.

This is what I've figured out so far:

No, I haven't yet given up, not fully anyway, in spite of my fervent wish to the contrary. There is still a glimmer of hope, like an ember in an otherwise dying fire. Add a little kindling – a well-timed cycle, pronounced premenstrual symptoms, a bunny in the front yard – and the whole thing is ablaze again.

But kindling is easy to come by. There are flare-ups every month. I find the prospect of stoking and tending the fire, gathering the heavy logs of sustained desire and a pursuit of purposeful intervention, utterly overwhelming. Why? Well, for one, the hope simply isn't very strong. I am discouraged by the idea that all that work and heartache could be for naught.

And then there is the shame. Somehow I feel foolish still longing for a baby after all these years. I suppose I've felt foolish all along, so strongly have I absorbed the message that smart, talented, interesting women have more important things to do than make babies. Or if they do make babies, and raise children, they do so with ease and only peripheral attention, akin to a trip to the bathroom in the midst of writing a fascinating dissertation. It's a terrible, sexist notion, one I know is patently invalid, but I live in a sexist culture, and in spite of myself, I've absorbed and internalized a measure of this thinking. It creeps in when I least expect it and requires concentration to banish.

And then there's the issue of pursuing effective medical help. I don't trust doctors easily. I mustered the courage to see a Reproductive Endocrinologist at one point, J~ and I went together. The doctor leaned way back in his chair and spoke in a relaxed, weary tone, going on about how underfunded research is in this field and how nobody really knows anything, reinforcing my feeling that it's all a crap shoot anyway.

I was relieved and pleased with this doctor at the time, so afraid was I of a salesman's fake smile and hucksterish enthusiasm, pushing me toward interventions that made me uncomfortable. Just sign on the dotted line and hand me your life savings, please. Now lie still on the table and we'll see if we can get to the bottom of this.

But then I started wondering maybe if this jaded-seeming doctor would have treated me differently if J~ and I were younger, if I seemed a more promising candidate. A letter came from the practice, two weeks after our appointment, announcing this doctor's decision to retire.

I never followed up.

I haven't tried another doctor.

J~ and I are talking about going to someone else, maybe someone recommended to me on this blog. The ball is in my court.

I keep putting it off.

Monday, May 11, 2009

Mother's Day Again



In the front yard the other day - she's back, daintily nibbling violets and dandelions. (If you were reading this blog last spring, you might remember this visitor, nicknamed Henrietta, and the symbolism I ascribed to her then.)

In the neighborhood, a barred owl – tan and white with great yellow eyes, big as a (fat) cat (we call it Hootie) – implores each evening and morning: Who cooks for you? Who cooks for yoooou? I got a good long look at him (her?) perched on a log not eight feet away, but no camera on me at the time, alas.

Biking 90-ish miles on the weekends lately, and a little more during the week. Loving it.

All dressed and ready to meet riding companions yesterday morning, I burst into tears when it hit me: it's Mother's Day.

This is still so new, this letting go of the pursuit of motherhood. I'm not sure that I have let go completely. Not yet anyway. But I'm headed in that direction. I'm thirty-nine now, after all, and though I'm not preventing, I'm no longer trying to conceive, nor am I pursuing answers anymore, or super-charge health cures, in regard to my many miscarriages. Another Mother's Day passing.

So I cried for a minute, then kissed my very sweet and supportive husband, strapped on my helmet, and rode off into the bright windy morning.

Friday, April 24, 2009

Opportunity

I received an email this morning from Lisa Rosenzweig, a Columbia University doctoral student in Counseling Psychology. She is researching the miscarriage experience. Have you had a miscarriage in the past six months? You may want to consider participating in her survey. If you have questions (like for instance, why limit to just the last six months?) you can email her directly.

Here's her text:

Research Opportunity

Everyone has a unique experience with miscarriage and many find help and support through websites like this one. Unfortunately, little is known about women's experiences of support and how this may affect responses to miscarriage, and so I invite you to participate in my dissertation research study examining women’s experiences following a miscarriage. Although there is no direct benefit to you, survey results may help healthcare providers better understand and meet the needs of women following miscarriage. This online survey takes approximately 15-20 minutes and is open to women who have miscarried a wanted pregnancy in the previous 6 months who are 18 years of age or older, living in the United States, and involved in a relationship with a significant other. Participants are eligible for a raffle for a $50 American Express gift certificate. For more information, please don't hesitate to contact me.

Lisa Rosenzweig
Teachers College
lsr2106@columbia.edu

Friday, April 17, 2009

Turning Over a New Leaf













After so many years of orienting my life around where I am in my menstrual cycle, it is both liberating and sad to throw in the towel. Liberating most of the time. But then I stumble into a pocket of sad. I suppose it will be like this for a while.

After a long two weeks of marathon work, I packed my cameras and a journal and took a leisurely afternoon hike yesterday. These photos are (part of) the result. FYI - the black background you see in some of them is my shirt.

Tuesday, March 24, 2009

Or Not.


See more of my art >>

Friday

9:15 am: Positive home pregnancy test. It's a faint second line, but it's really there. I stare and stare. A sweat breaks across my lower back. I leave a message on J~'s cell:

I want to talk to you... about... something.


9:30 - 10:30 am: I post a photo of the test on this blog. I have some happiness, some trepidation about the demands of parenthood. Though I know it may very well happen, I'm surprised to note that I'm not worried about miscarriage.

So why this nervous shaking in my thighs?



10:30 am: J~ returns my call and I tell him the news. Our conversation is guarded – upbeat, but not ecstatic.


11 am: It's decided - I will ride with my bike club on Saturday, despite the cold I'm fighting, despite the pregnancy. I find myself having an imaginary conversation with an imaginary Devil's Advocate:

D.A.: With your history, I'm surprised you don't just crawl into bed and stay there for the next nine months.

ME: No way. I don't want it that bad.

My response catches me off guard. I don't?


4 pm: I have not veered from my original plans for the day – work (client design stuff, plus I'm preparing for an art show, only two weeks away and still lots to do), a walk, and a drive to the bike shop to pay for my new bicycle.

This is no small purchase. I've resisted for a year, unsure of my commitment to the sport, reasoning that if I were to get pregnant again, I would not be riding much. Last year, a fancy new bicycle seemed like a leap of faith in the wrong direction. But a year later I'm still riding, still loving it. And another pregnancy has not emerged.

Until today, of course.

Isn't this the way it always goes in the movies?

Okay, now I'm getting a little excited.


4:30 pm: I plunk my credit card down on the counter along with a patch kit, a spare inner tube, a few tools and accessories. The shopkeeper is chatting with her friend, commiserating about how, with young children, they no longer find the time to ride like they once did.

I resist the urge to blurt that I am pregnant, resist the pull to think about what they are saying. Resist also the desire to add an expensive form-fitting windbreaker to my purchases.


5:30 pm: Home again, I do another HPT, anxious to see a darker line. But it's just the opposite, fainter than the first test, almost nonexistent.

I feel completely deflated.


Saturday

7 am: another HPT: Negative this time, no doubt about it. Damn.


9:30 am: Bleeding. And to think - my period wasn't even due until Sunday! If I hadn't done the test, I never would've known an egg had been fertilized. Bum egg, bum sperm, bum uterus. Who knows.

10:30 am: pick up the co-op order. I look at all the other co-op members. It feels strange, and sad, that no one knows.


1 pm: 40-mile bike ride with my club. Feeling happy.

Happy?
It makes me nervous that I'm happy.


Sunday
Another 30 miles with the club followed by a two-hour nap on the couch. Still feeling happy. I can't make heads or tails of it.


Monday

I'm troubled that I don't seem to have any lingering feelings about this miscarriage. I admit to K~, my friend and counselor, I may be more excited about my work and riding my bike at this point then I am about getting pregnant.

And then it hits me, and I start to cry.

It's been a long, hard road. It didn't lead where I had hoped it would lead. This was not the goal. I did not want to find myself here. But it's happened, and there's nothing to be done.

I've moved on.

Sunday, March 08, 2009

Recap and Reprise



Past and Future Ghosts, 11 x 17" gouache and ink on paper.
This piece will appear in an art show upcoming at Windham Arts Collaborative, in Willimatic, CT. If you're in the area, come to the opening reception on Friday, April 3rd. I'd love to see you! (Details here)

I began this blog shortly after my second miscarriage, which took place on a Wednesday night in November, 2005. I was at work when I knew for certain.

I worked as an abortion counselor.

I left the clinic early that evening, heading home to my hot water bottle and an empty apartment. (My husband, A~, was away on business.) Luckily, this loss was easier than the first - quicker, less painful. I could handle it on my own. The grief that followed was a hard but familiar terrain.

Shortly thereafter, my marriage shattered. After more than a decade together, it was a sudden and devastating break. I felt like I'd been run over by a truck: nauseous and heartsick and unable to breathe properly for months. At the same time, I felt freed of a great weight. A life I thought I could never endure (without A~) became a life full of promise. I wrote all about it on these virtual pages.

During this time, I was introduced to J~, who was struggling with a very similar life crisis. Three years (and, sadly, two more miscarriages) have come and gone. J~ and I are married - happily, to say the least. B~, my stepson, now in high school, is thriving.

Babies or not? It's still an open question, though it burns less urgently than it did when I began discussing it here.

Babies or not, life is good.

Tuesday, February 03, 2009

The Fence, the Grass, and the Color Green


Remembering my summer garden...

It's been five years, four miscarriages, two partners, and now a full year without a pregnancy since I began this pursuit of motherhood in earnest. It seems to me that the window for children to come into the world through my body is beginning to close. If it hasn't closed already.

Okay, I'll admit it. I've been crying my eyes out over this lately.

An old friend, younger than I, wrote to update me on her own infertility journey, which includes acupuncture, over a year of drugs, surgery (for endometriosis), IUIs (five of them), and now IVF. Not to mention the 3-hour commute to her RE's office.

I have nothing but respect and admiration and the highest hopes that her dedication will pay off.

But I ask myself: why am I not driven to follow a similar path?

This is not a new question. I revisit it all the time.

Is it because I am so easily overwhelmed by the medical world? Or is it because, in spite of my very sincere sadness, the desire to be a mother just isn't as strong in me as it is for some?

Though Number One on my wish list is an effortless pregnancy followed by a healthy child, Number Two is not a hard-won pregnancy, even if it came with a healthy-child guarantee.

No.

Next on my list is simply to let it go. Even if that means crying my eyes out on occasion.

Because when I'm not crying, there is time to make more art, read more good books, take more long walks, to take advantage of the time remaining in this very short life to love the people who are already around me.

Then again, I'm sure if I had that hard-won child, I would say every expense, every struggle was worth it. I'm sure the grass on that side of the fence would be very green.

I guess I'm gambling that if I keep watering the lawn of right here and now, I'll be okay with the grass under my feet.